Migraine-attributed burden, impact and disability, and migraine-impacted quality of life: Expert consensus on definitions from a Delphi process.

Humans Consensus Quality of Life Delphi Technique Migraine Disorders / diagnosis
Delphi Migraine burden definitions disability expert consensus impact quality of life

Journal

Cephalalgia : an international journal of headache
ISSN: 1468-2982
Titre abrégé: Cephalalgia
Pays: England
ID NLM: 8200710

Informations de publication

Date de publication:
Nov 2022
Historique:
pubmed: 7 7 2022
medline: 8 11 2022
entrez: 6 7 2022
Statut: ppublish

Résumé

Migraine-attributed burden, impact, disability and migraine-impacted quality of life are important concepts in clinical management, clinical and epidemiological research, and health policy, requiring clear and agreed definitions. We aimed to formulate concise and precise definitions of these concepts by expert consensus. We searched the terms migraine-attributed burden, impact, disability and migraine-impacted quality of life in Embase and Medline from 1974 and 1946 respectively. We followed a Delphi process to reach consensus on definitions. We found widespread conflation of concepts and inconsistent terminology within publications. Following three Delphi rounds, we defined These definitions and descriptions should foster consistency and encourage more appropriate use of currently available quantifying instruments and aid the future development of others.

Sections du résumé

BACKGROUND
Migraine-attributed burden, impact, disability and migraine-impacted quality of life are important concepts in clinical management, clinical and epidemiological research, and health policy, requiring clear and agreed definitions. We aimed to formulate concise and precise definitions of these concepts by expert consensus.
METHODS
We searched the terms migraine-attributed burden, impact, disability and migraine-impacted quality of life in Embase and Medline from 1974 and 1946 respectively. We followed a Delphi process to reach consensus on definitions.
RESULTS
We found widespread conflation of concepts and inconsistent terminology within publications. Following three Delphi rounds, we defined
CONCLUSION
These definitions and descriptions should foster consistency and encourage more appropriate use of currently available quantifying instruments and aid the future development of others.

Identifiants

DOI: 10.1177/03331024221110102 PMID: 35791285 PMC: PMC9638708
pubmed: 35791285
doi: 10.1177/03331024221110102
pmc: PMC9638708
doi:

Types de publication

Journal Article Review

Langues

eng

Sous-ensembles de citation

IM

Pagination

1387-1396

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Auteurs

Timothy J Steiner (TJ)

Department of Neuromedicine and Movement Science, NTNU Norwegian University of Science and Technology, Trondheim, Norway.
Division of Brain Sciences, Imperial College London, London, UK.

Gisela M Terwindt (GM)

Department of Neurology, Leiden University Medical Center, Leiden, The Netherlands.

Zaza Katsarava (Z)

Christian Hospital Unna, Unna, Germany.
Department of Neurology, University of Duisburg-Essen, Essen, Germany.
EVEX Medical Corporation, Tbilisi, Georgia.

Patricia Pozo-Rosich (P)

Headache Unit, Neurology Department, Vall d'Hebron University Hospital, Barcelona, Spain.
Headache Research Group, Vall d'Hebron Research Institute, Universitat Autonoma de Barcelona, Barcelona, Spain.
ORCID: 0000-0003-0796-4702

Andreas R Gantenbein (AR)

Department of Neurology, ZURZACH Care, Bad Zurzach, Switzerland.
Neurological Practice, Neurologie am Untertor, Bülach, Switzerland.
Department of Neurology, University Hospital Zurich, Zürich, Switzerland.
ORCID: 0000-0001-5686-0200

Sarah L Roche (SL)

Eli Lilly and Company, Cork, Ireland.

Grazia Dell'Agnello (G)

Eli Lilly Italia SpA, Sesto Fiorentino, Florence, Italy.

Cristina Tassorelli (C)

Department of Brain and Behavioral Sciences, University of Pavia, Pavia, Italy.
Headache Science & Neurorehabilitation Center, IRCCS Mondino Foundation, Pavia, Italy.
ORCID: 0000-0003-1513-2113

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