'It gives you the skills of how you can cope': Exploring the self-reported experience of patients receiving in-centre haemodialysis on participating in chosen art activities.
art
kidney failure
patient preference
qualitative research
renal dialysis
self-concept
Journal
Health expectations : an international journal of public participation in health care and health policy
ISSN: 1369-7625
Titre abrégé: Health Expect
Pays: England
ID NLM: 9815926
Informations de publication
Date de publication:
12 2021
12 2021
Historique:
revised:
17
06
2021
received:
29
03
2021
accepted:
01
07
2021
pubmed:
12
8
2021
medline:
27
1
2022
entrez:
11
8
2021
Statut:
ppublish
Résumé
Increasing numbers of patients are receiving dialysis, particularly in high-income countries. Patients receiving haemodialysis often experience fatigue, anxiety, depression and boredom. It is suggested that arts activities could have a therapeutic effect. This study aimed to explore patients' perspectives of participating while on dialysis in chosen arts and creative living activities provided by tutors at the bedside. Qualitative semi-structured interviews in the interpretive tradition were conducted, with thematic analysis. Fifteen patients of different ages, genders and ethnicities who participated in an arts activity while receiving haemodialysis in an inner-city dialysis unit in England were included in this study. Participants reported positive experiences of engaging in art activities. Their views on the value of the activities were grouped into five themes: diversion from receiving haemodialysis, a sense of achievement, contribution to a more positive self-identity, increased confidence and motivation and a therapeutic talking relationship. Participants suggested that patient peer promotion of the activities could increase uptake, with patient choice of activity seen as important. Participation in a chosen arts activity while receiving haemodialysis was perceived by patients to have positive psychosocial effects. We theorize three potential explanatory mechanisms for these effects: That the experience of participating in the activities engendered positive psychological states of 'being in the flow'; enhanced self-esteem to add to personal coping mechanisms; and offered additional facets to the patient's identity that countered the stigmatizing effect of receiving dialysis. Patients and public representatives advised on the design, research methods and tools.
Sections du résumé
BACKGROUND
Increasing numbers of patients are receiving dialysis, particularly in high-income countries. Patients receiving haemodialysis often experience fatigue, anxiety, depression and boredom. It is suggested that arts activities could have a therapeutic effect.
OBJECTIVE
This study aimed to explore patients' perspectives of participating while on dialysis in chosen arts and creative living activities provided by tutors at the bedside.
DESIGN
Qualitative semi-structured interviews in the interpretive tradition were conducted, with thematic analysis.
SETTING AND PARTICIPANTS
Fifteen patients of different ages, genders and ethnicities who participated in an arts activity while receiving haemodialysis in an inner-city dialysis unit in England were included in this study.
RESULTS
Participants reported positive experiences of engaging in art activities. Their views on the value of the activities were grouped into five themes: diversion from receiving haemodialysis, a sense of achievement, contribution to a more positive self-identity, increased confidence and motivation and a therapeutic talking relationship. Participants suggested that patient peer promotion of the activities could increase uptake, with patient choice of activity seen as important.
CONCLUSIONS
Participation in a chosen arts activity while receiving haemodialysis was perceived by patients to have positive psychosocial effects. We theorize three potential explanatory mechanisms for these effects: That the experience of participating in the activities engendered positive psychological states of 'being in the flow'; enhanced self-esteem to add to personal coping mechanisms; and offered additional facets to the patient's identity that countered the stigmatizing effect of receiving dialysis.
PATIENT OR PUBLIC CONTRIBUTION
Patients and public representatives advised on the design, research methods and tools.
Identifiants
pubmed: 34378286
doi: 10.1111/hex.13337
pmc: PMC8628595
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
1979-1987Informations de copyright
© 2021 The Authors. Health Expectations published by John Wiley & Sons Ltd.
Références
Kidney Int Rep. 2016 Sep 20;2(1):94-107
pubmed: 29318209
Nephrol Nurs J. 2018 Sep-Oct;45(5):463-468
pubmed: 30304631
BMC Nephrol. 2020 Nov 19;21(1):497
pubmed: 33213413
Semin Dial. 2016 Mar-Apr;29(2):158-64
pubmed: 26748494
Ir Med J. 2017 Sep 18;110(9):632
pubmed: 29372947
Health Expect. 2016 Jun;19(3):617-30
pubmed: 25649115
Health Expect. 2021 Dec;24(6):1979-1987
pubmed: 34378286
Health Expect. 2019 Dec;22(6):1285-1293
pubmed: 31560830
Am J Kidney Dis. 2009 Apr;53(4):689-700
pubmed: 19216015
Arts Health. 2021 Jun;13(2):107-133
pubmed: 32233723
Kidney Int. 2020 Jul;98(1):209-218
pubmed: 32416116
Qual Quant. 2018;52(4):1893-1907
pubmed: 29937585
Acad Med. 2014 Sep;89(9):1245-51
pubmed: 24979285
Am J Kidney Dis. 2006 Mar;47(3):462-8
pubmed: 16490625
BMJ Open. 2018 Sep 4;8(9):e023507
pubmed: 30181188