A drive for structure: A longitudinal qualitative study of the implementation of the Carer Support Needs Assessment Tool (CSNAT) intervention during hospital discharge at end of life.

Caregivers implementation science needs assessment palliative care patient discharge qualitative research terminal care

Journal

Palliative medicine
ISSN: 1477-030X
Titre abrégé: Palliat Med
Pays: England
ID NLM: 8704926

Informations de publication

Date de publication:
09 2020
Historique:
pubmed: 4 6 2020
medline: 15 5 2021
entrez: 4 6 2020
Statut: ppublish

Résumé

Informal carers are essential in enabling discharge home from hospital at end of life and supporting palliative patients at home, but are often ill-prepared for the role. Carers' support needs are rarely considered at discharge. If carers are less able to cope with home care, patient care may suffer and readmission may become more likely. To investigate the implementation of an evidence-based Carer Support Needs Assessment Tool (CSNAT) intervention to support carers during hospital discharge at end of life. Longitudinal qualitative study with thematic analysis. One National Health Service Trust in England: 12 hospital practitioners, one hospital administrator and four community practitioners. We provided training in CSNAT intervention use and implementation. Practitioners delivered the intervention for 6 months. Data collection was conducted in three phases: (1) pre-implementation interviews exploring understandings, anticipated benefits and challenges of the intervention; (2) observations of team meetings and review of intervention procedures and (3) follow-up interviews exploring experiences of working with the intervention. Despite efforts from practitioners, implementation was challenging. Three main themes captured facilitators and barriers to implementation: (1) structure and focus within carer support; (2) the 'right' people to implement the intervention and (3) practical implementation challenges. Structure and focus may facilitate implementation, but the dominance of outcomes measurement and performance metrics in health systems may powerfully frame perceptions of the intervention and implementation decisions. There is uncertainty over who is best-placed or responsible for supporting carers around hospital discharge, and challenges in connecting with carers prior to discharge.

Sections du résumé

BACKGROUND
Informal carers are essential in enabling discharge home from hospital at end of life and supporting palliative patients at home, but are often ill-prepared for the role. Carers' support needs are rarely considered at discharge. If carers are less able to cope with home care, patient care may suffer and readmission may become more likely.
AIM
To investigate the implementation of an evidence-based Carer Support Needs Assessment Tool (CSNAT) intervention to support carers during hospital discharge at end of life.
DESIGN
Longitudinal qualitative study with thematic analysis.
SETTING/PARTICIPANTS
One National Health Service Trust in England: 12 hospital practitioners, one hospital administrator and four community practitioners. We provided training in CSNAT intervention use and implementation. Practitioners delivered the intervention for 6 months. Data collection was conducted in three phases: (1) pre-implementation interviews exploring understandings, anticipated benefits and challenges of the intervention; (2) observations of team meetings and review of intervention procedures and (3) follow-up interviews exploring experiences of working with the intervention.
RESULTS
Despite efforts from practitioners, implementation was challenging. Three main themes captured facilitators and barriers to implementation: (1) structure and focus within carer support; (2) the 'right' people to implement the intervention and (3) practical implementation challenges.
CONCLUSIONS
Structure and focus may facilitate implementation, but the dominance of outcomes measurement and performance metrics in health systems may powerfully frame perceptions of the intervention and implementation decisions. There is uncertainty over who is best-placed or responsible for supporting carers around hospital discharge, and challenges in connecting with carers prior to discharge.

Identifiants

pubmed: 32491967
doi: 10.1177/0269216320930935
pmc: PMC7388143
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

1088-1096

Subventions

Organisme : Department of Health
Pays : United Kingdom

Références

Int J Nurs Stud. 2016 Dec;64:32-41
pubmed: 27684320
Palliat Med. 2013 Mar;27(3):244-56
pubmed: 22450160
Int J Nurs Stud. 2016 Dec;64:1-12
pubmed: 27657662
Worldviews Evid Based Nurs. 2018 Oct;15(5):377-385
pubmed: 30152150
Int J Nurs Stud. 2013 May;50(5):587-92
pubmed: 23159157
BMJ Support Palliat Care. 2017 Sep;7(3):326-334
pubmed: 26719349
J Clin Oncol. 2011 Mar 20;29(9):1159-67
pubmed: 21343566
J Pain Symptom Manage. 2013 Sep;46(3):395-405
pubmed: 23245452
J Med Internet Res. 2017 Nov 01;19(11):e367
pubmed: 29092808
J Adv Nurs. 2016 Sep;72(9):2162-72
pubmed: 27113470
Palliat Med. 2017 Apr;31(4):346-355
pubmed: 28281406
PLoS One. 2015 Apr 07;10(4):e0123012
pubmed: 25849348
BMC Palliat Care. 2018 Dec 20;17(1):129
pubmed: 30572859
BMC Palliat Care. 2013 Feb 15;12:7
pubmed: 23414145
Palliat Med. 2018 Dec;32(10):1605-1614
pubmed: 30130458
Br J Community Nurs. 2015 Dec;20(12):580-4
pubmed: 26636891
Age Ageing. 2018 May 01;47(3):374-380
pubmed: 29370339
Palliat Med. 2018 May;32(5):939-949
pubmed: 29490198
Palliat Med. 2018 Feb;32(2):329-336
pubmed: 29017018
BMC Palliat Care. 2018 Mar 1;17(1):39
pubmed: 29490657
BMJ. 2006 Mar 4;332(7540):515-21
pubmed: 16467346

Auteurs

Alex Hall (A)

School of Health Sciences, University of Manchester, Manchester, UK.
National Institute for Health Research (NIHR) Collaboration for Leadership in Applied Health Research and Care Greater Manchester (CLAHRC GM), Salford Royal Foundation NHS Trust, Salford, UK.

Gail Ewing (G)

Centre for Family Research, University of Cambridge, Cambridge, UK.

Christine Rowland (C)

School of Health Sciences, University of Manchester, Manchester, UK.
National Institute for Health Research (NIHR) Collaboration for Leadership in Applied Health Research and Care Greater Manchester (CLAHRC GM), Salford Royal Foundation NHS Trust, Salford, UK.

Gunn Grande (G)

School of Health Sciences, University of Manchester, Manchester, UK.
National Institute for Health Research (NIHR) Collaboration for Leadership in Applied Health Research and Care Greater Manchester (CLAHRC GM), Salford Royal Foundation NHS Trust, Salford, UK.

Articles similaires

[Redispensing of expensive oral anticancer medicines: a practical application].

Lisanne N van Merendonk, Kübra Akgöl, Bastiaan Nuijen
1.00
Humans Antineoplastic Agents Administration, Oral Drug Costs Counterfeit Drugs

Smoking Cessation and Incident Cardiovascular Disease.

Jun Hwan Cho, Seung Yong Shin, Hoseob Kim et al.
1.00
Humans Male Smoking Cessation Cardiovascular Diseases Female
Humans United States Aged Cross-Sectional Studies Medicare Part C
1.00
Humans Yoga Low Back Pain Female Male

Classifications MeSH