[The contribution of an ethical concertation group in nephrology validated by a research protocol].

L’apport d’une unité de concertation éthique pour la pratique professionnelle en néphrologie validé par un protocole de recherche.

Journal

Nephrologie & therapeutique
ISSN: 1872-9177
Titre abrégé: Nephrol Ther
Pays: France
ID NLM: 101248950

Informations de publication

Date de publication:
Dec 2019
Historique:
received: 27 03 2019
revised: 14 07 2019
accepted: 17 07 2019
pubmed: 16 11 2019
medline: 6 5 2020
entrez: 16 11 2019
Statut: ppublish

Résumé

For more than 10 years, nephrologists in the Grenoble-region have sought advice from the Ethical Concertation Unit in Nephrology with regards to whether to stop or continue dialysis for patients under palliative care. This process deserves a multidisciplinary debate between health professionals and qualified non-health professionals. Thus, we organized a qualitative research protocol in three parts (medical, philosophical, judicial) to explore this issue. Our study aimed to assess the impact of Ethical Concertation Unit in Nephrology's discussions regarding perception, knowledge, and judicial and ethical considerations. The practical repercussions of decision-making within medical practice, its impacts on the patient and his/her family, as well as associated-health professionals, was assessed. To achieve this, two questionnaires and an interview were organized by three Ethical Concertation Unit in Nephrology-leaders to review the viewpoints of the 22 permanent Ethical Concertation Unit in Nephrology members that had participated in 10 Ethical Concertation Unit in Nephrology sessions between 2015 and 2016 to discuss 21 case-reports. Only 13 persons (4 physicians, 6 nurses, 3 non-health professionals) agreed to respond to the questionnaires, and six physicians agreed to participate in an interview. Overall, it was found that most affected patients' physicians agreed with the multidisciplinary discussion, which included judicial and ethical perspectives, and felt reassured with regards to Ethical Concertation Unit in Nephrology's final decision. However, our study showed that Ethical Concertation Unit in Nephrology's functioning could be improved by promoting its existence more widely, by making these decisions earlier within clinical situations, to make Ethical Concertation Unit in Nephrology more accessible to health workers, to make reports easier to understand, to re-examine a posteriori some clinical situations, and to broaden the scope of multidisciplinary skills.

Identifiants

pubmed: 31727511
pii: S1769-7255(19)30538-3
doi: 10.1016/j.nephro.2019.07.330
pii:
doi:

Types de publication

Journal Article

Langues

fre

Sous-ensembles de citation

IM

Pagination

498-505

Informations de copyright

Copyright © 2019. Published by Elsevier Masson SAS.

Auteurs

Jocelyne Maurizi-Balzan (J)

Service de néphrologie, hémodialyse, aphérèses et transplantation rénale, CHU de Grenoble-Alpes, CS 10217, 38043 Grenoble cedex 09, France. Electronic address: jmaurizi@chu-grenoble.fr.

Éric Fourneret (É)

Inserm, Braintech Laboratory, Université Grenoble-Alpes U1205, 2280, rue de la piscine, 38400 Saint-Martin-d'Hères, France; Institut des sciences juridique et philosophique, Université Paris 1 Panthéon-Sorbonne (UMR 8103, CNRS), 12, place du Panthéon, 75231 Paris, France.

Laurence Cimar (L)

Centre de recherches juridiques EA 1965 et structure fédérative de recherche santé et société, Université Grenoble-Alpes, CS 40700, 38058 Grenoble cedex 9, France.

Johan Noble (J)

Service de néphrologie, hémodialyse, aphérèses et transplantation rénale, CHU de Grenoble-Alpes, CS 10217, 38043 Grenoble cedex 09, France; Université Grenoble-Alpes, 621, avenue Centrale, 38400 Saint-Martin-d'Hères, France.

Hamza Naciri-Bennani (H)

Service de néphrologie, hémodialyse, aphérèses et transplantation rénale, CHU de Grenoble-Alpes, CS 10217, 38043 Grenoble cedex 09, France.

Rachel Tetaz (R)

Service de néphrologie, hémodialyse, aphérèses et transplantation rénale, CHU de Grenoble-Alpes, CS 10217, 38043 Grenoble cedex 09, France.

Lionel Rostaing (L)

Service de néphrologie, hémodialyse, aphérèses et transplantation rénale, CHU de Grenoble-Alpes, CS 10217, 38043 Grenoble cedex 09, France; Université Grenoble-Alpes, 621, avenue Centrale, 38400 Saint-Martin-d'Hères, France.

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Classifications MeSH