Bridges of perspectives: representation of people with lived experience of spinal cord injury in editorial boards and peer review.

Editorial review Inclusivity Peer review Research integrity Spinal cord injury

Journal

Research integrity and peer review
ISSN: 2058-8615
Titre abrégé: Res Integr Peer Rev
Pays: England
ID NLM: 101676020

Informations de publication

Date de publication:
21 Sep 2023
Historique:
received: 19 04 2023
accepted: 10 08 2023
medline: 21 9 2023
pubmed: 21 9 2023
entrez: 20 9 2023
Statut: epublish

Résumé

Diversity among editorial boards and in the peer review process maximizes the likelihood that the dissemination of reported results is both relevant and respectful to readers and end users. Past studies have examined diversity among editorial board members and reviewers for factors such as gender, geographic location, and race, but limited research has explored the representation of people with disabilities. Here, we sought to understand the landscape of inclusivity of people with lived experience of spinal cord injury specifically in journals publishing papers (2012-2022) on their quality of life. An open and closed 12-question adaptive survey was disseminated to 31 journal editors over a one-month period beginning December 2022. We received 10 fully completed and 5 partially completed survey responses (response rate 48%). Notwithstanding the small sample, over 50% (8/15) of respondents indicated that their journal review practices involve people with lived experience of spinal cord injury, signaling positive even if incomplete inclusivity practices. The most notable reported barriers to achieving this goal related to identifying and recruiting people with lived experience to serve in the review and editorial process. In this study we found positive but incomplete trends toward inclusivity in journal practices involving people with lived experience of spinal cord injury. We recommend, therefore, that explicit and genuine efforts are directed toward recruitment through community-based channels. To improve representation even further, we suggest that editors and reviewers be offered the opportunity to self-identify as living with a disability without discrimination or bias.

Sections du résumé

BACKGROUND BACKGROUND
Diversity among editorial boards and in the peer review process maximizes the likelihood that the dissemination of reported results is both relevant and respectful to readers and end users. Past studies have examined diversity among editorial board members and reviewers for factors such as gender, geographic location, and race, but limited research has explored the representation of people with disabilities. Here, we sought to understand the landscape of inclusivity of people with lived experience of spinal cord injury specifically in journals publishing papers (2012-2022) on their quality of life.
METHODS METHODS
An open and closed 12-question adaptive survey was disseminated to 31 journal editors over a one-month period beginning December 2022.
RESULTS RESULTS
We received 10 fully completed and 5 partially completed survey responses (response rate 48%). Notwithstanding the small sample, over 50% (8/15) of respondents indicated that their journal review practices involve people with lived experience of spinal cord injury, signaling positive even if incomplete inclusivity practices. The most notable reported barriers to achieving this goal related to identifying and recruiting people with lived experience to serve in the review and editorial process.
CONCLUSIONS CONCLUSIONS
In this study we found positive but incomplete trends toward inclusivity in journal practices involving people with lived experience of spinal cord injury. We recommend, therefore, that explicit and genuine efforts are directed toward recruitment through community-based channels. To improve representation even further, we suggest that editors and reviewers be offered the opportunity to self-identify as living with a disability without discrimination or bias.

Identifiants

pubmed: 37730666
doi: 10.1186/s41073-023-00138-0
pii: 10.1186/s41073-023-00138-0
pmc: PMC10512589
doi:

Types de publication

Journal Article

Langues

eng

Pagination

12

Subventions

Organisme : Government of Canada New Frontiers in Research Fund (NFRF)
ID : NFRFT-2020-00238

Informations de copyright

© 2023. BioMed Central Ltd., part of Springer Nature.

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Auteurs

Anna Nuechterlein (A)

Neuroethics Canada, Division of Neurology, Department of Medicine, University of British Columbia, 2211 Wesbrook Mall, Koerner S124, Vancouver, BC, V6T 2B5, Canada.

Tanya Barretto (T)

Neuroethics Canada, Division of Neurology, Department of Medicine, University of British Columbia, 2211 Wesbrook Mall, Koerner S124, Vancouver, BC, V6T 2B5, Canada.

Alaa Yehia (A)

Neuroethics Canada, Division of Neurology, Department of Medicine, University of British Columbia, 2211 Wesbrook Mall, Koerner S124, Vancouver, BC, V6T 2B5, Canada.

Judy Illes (J)

Neuroethics Canada, Division of Neurology, Department of Medicine, University of British Columbia, 2211 Wesbrook Mall, Koerner S124, Vancouver, BC, V6T 2B5, Canada. jilles@mail.ubc.ca.

Classifications MeSH