The Italian versions of the This Is ME Questionnaire and the Patient Dignity Question: Understanding personhood and supporting dignity in patients with terminal cancer.

Cancer patients End-of-life Italian validation Patient Dignity Question This Is ME Questionnaire

Journal

Palliative & supportive care
ISSN: 1478-9523
Titre abrégé: Palliat Support Care
Pays: England
ID NLM: 101232529

Informations de publication

Date de publication:
06 Sep 2023
Historique:
medline: 6 9 2023
pubmed: 6 9 2023
entrez: 6 9 2023
Statut: aheadofprint

Résumé

Patients with cancer at the end of life may suffer from high psychological distress, a sense of demoralization, and a lack of dignity related to their medical condition. The This Is ME (TIME) Questionnaire and the Patient Dignity Question (PDQ) are clinical tools developed to achieve comprehensive and personalized patient care and to deepen our understanding of personhood. The objective of this study was to translate and validate the TIME Questionnaire, which contains the PDQ, into Italian to evaluate patient satisfaction of the Italian version of these tools and to identify essential themes elicited by the tools. The validation process consisted of a forward and back translation stage, data collection from a sample of 60 patients with terminal cancer, and a final consultation with a panel of experts to identify patient themes using the results of the tool. Overall, participants felt that the PDQ/TIME questionnaire captured their essence as a person, allowed them to express their values and beliefs, and helped the health care professionals (HCP) to take better care of them. Content analysis identified "family relationships," "global pain," and "family roles and accomplishments" as being of most importance to patients. The Italian versions of the PDQ/TIME Questionnaire are clear, precise, understandable, and focused on understanding personhood in patients with advanced cancer. These tools should be used to proactively enhance patient-caregiver and patient-HCP relationships and to develop new perspectives of patient care focused on the critical dimension of personhood.

Identifiants

pubmed: 37671583
doi: 10.1017/S1478951523001281
pii: S1478951523001281
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

1-7

Auteurs

Andrea Bovero (A)

Clinical Psychology Unit, AOU "Città della Salute e della Scienza di Torino" Hospital, Turin, Italy.

Francesca Cotardo (F)

Clinical Psychology Unit, AOU "Città della Salute e della Scienza di Torino" Hospital, Turin, Italy.

Alessandra Loreta Cito (AL)

Clinical Psychology Unit, AOU "Città della Salute e della Scienza di Torino" Hospital, Turin, Italy.

Alexa Victoria Pidinchedda (AV)

Clinical Psychology Unit, AOU "Città della Salute e della Scienza di Torino" Hospital, Turin, Italy.

Sara Pesce (S)

Clinical Psychology Unit, AOU "Città della Salute e della Scienza di Torino" Hospital, Turin, Italy.

Harvey Max Chochinov (HM)

Department of Psychiatry, University of Manitoba, Winnipeg, MB, Canada.
Department of Psychiatry and Cancer Care Manitoba Research Institute, University of Manitoba, Winnipeg, MB, Canada.

Sara Carletto (S)

Clinical Psychology Unit, AOU "Città della Salute e della Scienza di Torino" Hospital, Turin, Italy.
Department of Clinical and Biological Sciences, University of Torino, Turin, Italy.

Classifications MeSH