FAIR4Health: Findable, Accessible, Interoperable and Reusable data to foster Health Research.
FAIR principles
HL7 FHIR
data reuse
data sharing
health data
health research
health research data management
machine learning.
open science
privacy-preserving computing
Journal
Open research Europe
ISSN: 2732-5121
Titre abrégé: Open Res Eur
Pays: Belgium
ID NLM: 9918230081006676
Informations de publication
Date de publication:
2022
2022
Historique:
accepted:
25
05
2022
medline:
31
5
2022
pubmed:
31
5
2022
entrez:
30
8
2023
Statut:
epublish
Résumé
Due to the nature of health data, its sharing and reuse for research are limited by ethical, legal and technical barriers. The FAIR4Health project facilitated and promoted the application of FAIR principles in health research data, derived from the publicly funded health research initiatives to make them Findable, Accessible, Interoperable, and Reusable (FAIR). To confirm the feasibility of the FAIR4Health solution, we performed two pathfinder case studies to carry out federated machine learning algorithms on FAIRified datasets from five health research organizations. The case studies demonstrated the potential impact of the developed FAIR4Health solution on health outcomes and social care research. Finally, we promoted the FAIRified data to share and reuse in the European Union Health Research community, defining an effective EU-wide strategy for the use of FAIR principles in health research and preparing the ground for a roadmap for health research institutions. This scientific report presents a general overview of the FAIR4Health solution: from the FAIRification workflow design to translate raw data/metadata to FAIR data/metadata in the health research domain to the FAIR4Health demonstrators' performance.
Identifiants
pubmed: 37645268
doi: 10.12688/openreseurope.14349.2
pmc: PMC10446092
doi:
Types de publication
Journal Article
Langues
eng
Pagination
34Informations de copyright
Copyright: © 2022 Alvarez-Romero C et al.
Déclaration de conflit d'intérêts
No competing interests were disclosed.
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