Development and outcomes of a patient driven cystic fibrosis quality of care improvement project.
Patient involvement quality mark
Patient participation
Patient perspective
Quality of care
Journal
Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society
ISSN: 1873-5010
Titre abrégé: J Cyst Fibros
Pays: Netherlands
ID NLM: 101128966
Informations de publication
Date de publication:
01 2023
01 2023
Historique:
received:
21
01
2022
revised:
04
07
2022
accepted:
07
07
2022
pubmed:
17
7
2022
medline:
15
3
2023
entrez:
16
7
2022
Statut:
ppublish
Résumé
The Dutch CF Foundation (NCFS) developed a quality improvement program, to assess and improve quality of care in all CF centers in The Netherlands. Criteria to assess quality of care from the patient perspective were defined, and quality of care was assessed by patients via online surveys and site visits. Recommendations were addressed to all centers to improve quality of care. Most recommendations were related to communicational issues. All centers were given the quality mark of the patient organisation, although two of them needed extra time to meet the lower limit of the core set of criteria. After two years, over 75 % of the recommendations given to the centers were fully or partly implemented, showing a high efficacy of the program.
Identifiants
pubmed: 35842291
pii: S1569-1993(22)00622-1
doi: 10.1016/j.jcf.2022.07.004
pii:
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
172-178Informations de copyright
Copyright © 2022. Published by Elsevier B.V.
Déclaration de conflit d'intérêts
Declaration of Competing Interest All Authors declare not to have any conflict of interest.