The Impact of Canadian Medical Delays and Preventive Measures on Breast Cancer Experience: A Silent Battle Masked by the COVID-19 Pandemic.

Psychological distress mental health oncology pandemic qualitative research recommendations

Journal

The Canadian journal of nursing research = Revue canadienne de recherche en sciences infirmieres
ISSN: 1705-7051
Titre abrégé: Can J Nurs Res
Pays: United States
ID NLM: 8910581

Informations de publication

Date de publication:
Mar 2023
Historique:
pubmed: 30 4 2022
medline: 17 2 2023
entrez: 29 4 2022
Statut: ppublish

Résumé

The COVID-19 pandemic led to the prioritization of breast cancer services towards patients who are currently in treatment or diagnosed with advanced stages of breast cancer, and the self-assessment of both tumor growth and treatment side effects. Alongside the stress associated with cancer itself, delays and complications due to COVID-19 may impact patients' mental health. To describe the experiences of Canadians living with breast cancer who received a diagnosis and/or treatment during the pandemic, and to identify their recommendations for improving patients well-being during future pandemics. Semi-structured interviews were conducted with eighteen women living with breast cancer who also completed the Distress Thermometer questionnaire. The transcripts were analyzed using a descriptive thematic content methodology. Women who started their breast cancer screening or treatment before the pandemic reported fewer delays and less psychological distress than those who started during the pandemic. Participants reported feeling dehumanized while receiving their medical care, being unable to be accompanied during medical visits, and fearing treatment interruption during the pandemic. Patient recommendations for improving care and psychological support included the presence of family caregivers at consultations to receive the diagnosis and for the first treatment session. Study findings provide new insights on how healthcare restrictions during the pandemic impacted on patient experiences and their well-being during screening and treatment for breast cancer. The need for cancer nursing practices and care delivery strategies that promote the delivery of compassionate, patient-centred care and the provision of psychological support during future pandemics are identified.

Sections du résumé

BACKGROUND BACKGROUND
The COVID-19 pandemic led to the prioritization of breast cancer services towards patients who are currently in treatment or diagnosed with advanced stages of breast cancer, and the self-assessment of both tumor growth and treatment side effects. Alongside the stress associated with cancer itself, delays and complications due to COVID-19 may impact patients' mental health.
PURPOSE OBJECTIVE
To describe the experiences of Canadians living with breast cancer who received a diagnosis and/or treatment during the pandemic, and to identify their recommendations for improving patients well-being during future pandemics.
METHODS METHODS
Semi-structured interviews were conducted with eighteen women living with breast cancer who also completed the Distress Thermometer questionnaire. The transcripts were analyzed using a descriptive thematic content methodology.
RESULTS RESULTS
Women who started their breast cancer screening or treatment before the pandemic reported fewer delays and less psychological distress than those who started during the pandemic. Participants reported feeling dehumanized while receiving their medical care, being unable to be accompanied during medical visits, and fearing treatment interruption during the pandemic. Patient recommendations for improving care and psychological support included the presence of family caregivers at consultations to receive the diagnosis and for the first treatment session.
CONCLUSION CONCLUSIONS
Study findings provide new insights on how healthcare restrictions during the pandemic impacted on patient experiences and their well-being during screening and treatment for breast cancer. The need for cancer nursing practices and care delivery strategies that promote the delivery of compassionate, patient-centred care and the provision of psychological support during future pandemics are identified.

Identifiants

pubmed: 35484788
doi: 10.1177/08445621221097520
pmc: PMC9086203
doi:

Types de publication

Journal Article

Langues

eng

Pagination

55-67

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Auteurs

Justine Fortin (J)

Department of Psychology, 14845Université du Québec à Montréal, Montreal, Quebec, Canada.
Centre de recherche de l'Institut en santé mentale de Montréal, 439499CIUSSS-de-l'Est-de-l'Île-de-Montréal, Montreal, Quebec, Canada.

Marjolaine Rivest-Beauregard (M)

Department of Psychiatry, 5620McGill University, Montreal, Quebec, Canada.

Clarisse Defer (C)

Department of Oncology, Hôpital Maisonneuve-Rosemont 439499(CIUSSS-de-l'Est-de-l'Île-de-Montréal), Montreal, Quebec, Canada.

Mélissandre Leblanc (M)

Department of psychology, 5622Université de Montréal, Montreal, Quebec, Canada.

Lunie Anne Thamar Louis (LA)

Department of psychology, 5622Université de Montréal, Montreal, Quebec, Canada.

Carol-Anne Roy (CA)

Department of Psychology, 59310Université du Québec en Outaouais, Montreal, Quebec, Canada.

Isabelle Lapierre (I)

Patient-partner, Montreal, Quebec, Canada.

Alain Brunet (A)

Department of Psychiatry, 5620McGill University, Montreal, Quebec, Canada.

Marjorie Montreuil (M)

Centre de recherche de l'Institut en santé mentale de Montréal, 439499CIUSSS-de-l'Est-de-l'Île-de-Montréal, Montreal, Quebec, Canada.
Department of Nursing, 5620McGill University, Montreal, Quebec, Canada.

Marie-France Marin (MF)

Department of Psychology, 14845Université du Québec à Montréal, Montreal, Quebec, Canada.
Centre de recherche de l'Institut en santé mentale de Montréal, 439499CIUSSS-de-l'Est-de-l'Île-de-Montréal, Montreal, Quebec, Canada.

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Classifications MeSH