The Needs of Parents of Children Suffering from Cancer-Continuation of Research.
cancer
children
needs
parents
Journal
Children (Basel, Switzerland)
ISSN: 2227-9067
Titre abrégé: Children (Basel)
Pays: Switzerland
ID NLM: 101648936
Informations de publication
Date de publication:
23 Jan 2022
23 Jan 2022
Historique:
received:
14
12
2021
revised:
17
01
2022
accepted:
19
01
2022
entrez:
25
2
2022
pubmed:
26
2
2022
medline:
26
2
2022
Statut:
epublish
Résumé
Parents experience many healthcare needs when caring for their sick children. Research shows that parents of oncological children have a high level of unmet needs, including psychosocial, emotional, physical, informational, financial, educational, and spiritual needs. To date, little quantitative research has been carried out on the specific needs of parents of children with cancer, which creates uncertainty about what areas should be addressed in care. This study investigated the prevalence of unmet needs among parents of children with cancer. A population survey was conducted between 2015 and 2020. Caregivers of children diagnosed with cancer were invited to participate in the study to assess their problems and needs. The analysis found that 97% of the participants experienced some level of need for one or more items, and 73% of the respondents reported a moderate or high need for one or more items. In the field of medical information, 70% of respondents had moderate or high needs, 55% of parents reported a moderate or high level of need for help in the psychological or emotional field, and 30% in the financial domain. The prevalence of moderate or high need in the remaining domains ranged from 10% to 15%. Parents of children with cancer experience a high level of needs, especially psychological, emotional, and information. These data suggest that the existing healthcare system does not meet the needs of parents of sick children. The results show the need to investigate the mechanisms by which healthcare providers can use the healthcare system to identify and meet needs.
Sections du résumé
BACKGROUND
BACKGROUND
Parents experience many healthcare needs when caring for their sick children. Research shows that parents of oncological children have a high level of unmet needs, including psychosocial, emotional, physical, informational, financial, educational, and spiritual needs. To date, little quantitative research has been carried out on the specific needs of parents of children with cancer, which creates uncertainty about what areas should be addressed in care. This study investigated the prevalence of unmet needs among parents of children with cancer.
METHODS
METHODS
A population survey was conducted between 2015 and 2020. Caregivers of children diagnosed with cancer were invited to participate in the study to assess their problems and needs.
RESULTS
RESULTS
The analysis found that 97% of the participants experienced some level of need for one or more items, and 73% of the respondents reported a moderate or high need for one or more items. In the field of medical information, 70% of respondents had moderate or high needs, 55% of parents reported a moderate or high level of need for help in the psychological or emotional field, and 30% in the financial domain. The prevalence of moderate or high need in the remaining domains ranged from 10% to 15%.
CONCLUSIONS
CONCLUSIONS
Parents of children with cancer experience a high level of needs, especially psychological, emotional, and information. These data suggest that the existing healthcare system does not meet the needs of parents of sick children. The results show the need to investigate the mechanisms by which healthcare providers can use the healthcare system to identify and meet needs.
Identifiants
pubmed: 35204865
pii: children9020144
doi: 10.3390/children9020144
pmc: PMC8870376
pii:
doi:
Types de publication
Journal Article
Langues
eng
Références
Br J Cancer. 2009 Sep 1;101(5):759-64
pubmed: 19654579
Patient Educ Couns. 2009 Nov;77(2):179-86
pubmed: 19406609
Qual Health Res. 2001 May;11(3):363-84
pubmed: 11339080
Children (Basel). 2020 May 01;7(5):
pubmed: 32369950
J Pediatr Oncol Nurs. 1997 Jan;14(1):18-26
pubmed: 9019040
Biopsychosoc Med. 2020 Oct 22;14:29
pubmed: 33110443
PLoS One. 2018 Nov 28;13(11):e0206917
pubmed: 30485299
Oncol Nurs Forum. 1993 Nov-Dec;20(10):1559-66
pubmed: 8278281
Int J Environ Res Public Health. 2020 Oct 23;17(21):
pubmed: 33114144
J Educ Health Promot. 2019 Dec 31;8:246
pubmed: 32002418
BMC Public Health. 2019 Aug 27;19(1):1164
pubmed: 31455340
Cancer Nurs. 2001 Dec;24(6):483-9
pubmed: 11762511
Oncol Nurs Forum. 2004 Nov 16;31(6):E116-26
pubmed: 15547626
J Pediatr Oncol Nurs. 1999 Jan;16(1):44-50
pubmed: 9989016
Ann Palliat Med. 2016 Jul;5(3):157-65
pubmed: 27199271
Biopsychosoc Med. 2018 Dec 12;12:20
pubmed: 30559833
Int J Cancer. 2011 Sep 1;129(5):1190-8
pubmed: 21064097
Niger Med J. 2016 Jan-Feb;57(1):10-8
pubmed: 27185973
Soc Work Health Care. 1996;22(4):53-71
pubmed: 8807738
J Pediatr Nurs. 1994 Dec;9(6):368-79
pubmed: 7837055
Int J Environ Res Public Health. 2020 Oct 26;17(21):
pubmed: 33114556
J Pediatr Nurs. 1999 Apr;14(2):99-109
pubmed: 10337121
J Fam Psychol. 2016 Dec;30(8):1008-1013
pubmed: 27617476
J Paediatr Child Health. 1993 Oct;29(5):352-6
pubmed: 8240863
J Pediatr Nurs. 1997 Oct;12(5):278-87
pubmed: 9330503
Cancer Pract. 2001 Jul-Aug;9(4):198-205
pubmed: 11879311
J Pediatr Nurs. 1992 Dec;7(6):386-94
pubmed: 1291674
J Pediatr Oncol Nurs. 2002 May-Jun;19(3):104-11
pubmed: 12066262
Int J Environ Res Public Health. 2021 Jan 17;18(2):
pubmed: 33477253
Health Qual Life Outcomes. 2017 Dec 13;15(1):242
pubmed: 29237460
Clin Psychol Rev. 2006 May;26(3):233-56
pubmed: 16412542
J Pediatr Oncol Nurs. 2001 May-Jun;18(3):124-36
pubmed: 11373718
J Pediatr Oncol Nurs. 2016 Jan-Feb;33(1):9-17
pubmed: 25643969
Healthcare (Basel). 2020 Nov 03;8(4):
pubmed: 33153086
J Pediatr Oncol Nurs. 1993 Jan;10(1):3-12
pubmed: 8435157
Biopsychosoc Med. 2019 Mar 8;13:6
pubmed: 30899323
J Adv Nurs. 2002 Jun;38(6):598-606
pubmed: 12067399
J Pediatr Oncol Nurs. 1994 Jul;11(3):102-8
pubmed: 7917136
Psychol Aging. 2011 Mar;26(1):1-14
pubmed: 21417538
Psychooncology. 2017 Dec;26(12):2109-2117
pubmed: 27859953
Psychooncology. 2006 Sep;15(9):805-16
pubmed: 16363001
Health Qual Life Outcomes. 2020 Apr 19;18(1):104
pubmed: 32307007
J Pediatr Oncol Nurs. 2018 Jan/Feb;35(1):6-15
pubmed: 28849719
J Pediatr Psychol. 2009 Jan-Feb;34(1):4-13
pubmed: 18073235