Systematic Development of Patient Decision Aids: An Update from the IPDAS Collaboration.
decision making
preference elicitation
shared decision making
values clarification
Journal
Medical decision making : an international journal of the Society for Medical Decision Making
ISSN: 1552-681X
Titre abrégé: Med Decis Making
Pays: United States
ID NLM: 8109073
Informations de publication
Date de publication:
10 2021
10 2021
Historique:
pubmed:
22
6
2021
medline:
26
11
2021
entrez:
21
6
2021
Statut:
ppublish
Résumé
The 2013 update of the evidence informing the quality dimensions behind the International Patient Decision Aid Standards (IPDAS) offered a model process for developers of patient decision aids. To summarize and update the evidence used to inform the systematic development of patient decision aids from the IPDAS Collaboration. To provide further details about design and development methods, we summarized findings from a subgroup ( The 283 development processes varied substantially from minimal iteration cycles to more complex processes, with multiple iterations, needs assessments, and extensive involvement of end users. We summarized minimal, medium, and maximal processes from the data. Authors of 54 of 66 articles (82%) provided self-reported UCD-11 ratings. Self-reported scores were significantly higher than reviewer ratings (reviewers: mean [SD] = 6.45 [3.10]; authors: mean [SD] = 9.62 [1.16], Decision aid developers have embraced principles of user-centered design in the development of patient decision aids while also underreporting aspects of user involvement in publications about their tools. Templates may reduce the need for extensive development, and new approaches for rapid development of aids have been proposed when a more detailed approach is not feasible. We provide empirically derived benchmark processes and a reporting checklist to support developers in more fully describing their development processes.[Box: see text].
Sections du résumé
BACKGROUND
The 2013 update of the evidence informing the quality dimensions behind the International Patient Decision Aid Standards (IPDAS) offered a model process for developers of patient decision aids.
OBJECTIVE
To summarize and update the evidence used to inform the systematic development of patient decision aids from the IPDAS Collaboration.
METHODS
To provide further details about design and development methods, we summarized findings from a subgroup (
RESULTS
The 283 development processes varied substantially from minimal iteration cycles to more complex processes, with multiple iterations, needs assessments, and extensive involvement of end users. We summarized minimal, medium, and maximal processes from the data. Authors of 54 of 66 articles (82%) provided self-reported UCD-11 ratings. Self-reported scores were significantly higher than reviewer ratings (reviewers: mean [SD] = 6.45 [3.10]; authors: mean [SD] = 9.62 [1.16],
CONCLUSIONS
Decision aid developers have embraced principles of user-centered design in the development of patient decision aids while also underreporting aspects of user involvement in publications about their tools. Templates may reduce the need for extensive development, and new approaches for rapid development of aids have been proposed when a more detailed approach is not feasible. We provide empirically derived benchmark processes and a reporting checklist to support developers in more fully describing their development processes.[Box: see text].
Identifiants
pubmed: 34148384
doi: 10.1177/0272989X211014163
pmc: PMC8664088
mid: NIHMS1693622
doi:
Types de publication
Journal Article
Research Support, N.I.H., Extramural
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
736-754Subventions
Organisme : NCI NIH HHS
ID : P30 CA016672
Pays : United States
Organisme : CIHR
ID : FDN-148426
Pays : Canada
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