Caregiver Burden Among Those Caring for Patients With Spina Bifida.
Burnout
Caregivers
Congenital
Spina Bifida
Transitional care
Urology
Journal
Urology
ISSN: 1527-9995
Titre abrégé: Urology
Pays: United States
ID NLM: 0366151
Informations de publication
Date de publication:
07 2021
07 2021
Historique:
received:
21
12
2020
revised:
15
03
2021
accepted:
21
03
2021
pubmed:
5
4
2021
medline:
1
3
2022
entrez:
4
4
2021
Statut:
ppublish
Résumé
1) To identify baseline characteristics of caregivers of school-aged children with spina bifida; 2) To identify independent predictors of caregiver burden in this population. A survey was distributed via Facebook advertising to caregivers of patients with congenital genitourinary anomalies from May to September 2018. Eligible participants (n = 408) entailed English-speaking adults who are involved in the patient's care and attend ≥50% of their medical appointments. Caregiver burden was assessed using the Caregiver Burden Inventory (CBI), where higher scores indicate higher burden. CBI ≥24 indicates need for respite and CBI ≥36 indicates high risk of burnout. Bivariate analyses (t-tests and chi-square tests) were conducted using STATA software. Our analysis includes 408 caregivers caring for patients with spina bifida. In our study population, 59.3% of caregivers were in need of respite due to caregiver burden and 26.7% of caregivers were so burdened that they are at risk of burning out (CBI score ≥36). Bivariate analysis showed that caregiver gender and number of tasks performed by the caregiver were significantly associated with risk of burnout (CBI ≥ 36). Multivariable analysis of overall caregiver burden showed increased risk of burnout (CBI ≥ 36) among older caregivers, female caregivers, and those performing more caregiving tasks. Caregiver burden is common among caregivers of patients with spina bifida, and further research is needed to identify strategies and resources for mitigating caregiver burden.
Identifiants
pubmed: 33812880
pii: S0090-4295(21)00288-0
doi: 10.1016/j.urology.2021.03.020
pmc: PMC8319054
mid: NIHMS1702346
pii:
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
339-344Subventions
Organisme : NIDDK NIH HHS
ID : K12 DK083021
Pays : United States
Informations de copyright
Copyright © 2021 Elsevier Inc. All rights reserved.
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