Learning from Black/African American Participants: Applying the Integrated Behavioral Model to Assess Recruitment Strategies for a Glaucoma Genetic Study.
Journal
Health communication
ISSN: 1532-7027
Titre abrégé: Health Commun
Pays: England
ID NLM: 8908762
Informations de publication
Date de publication:
04 2022
04 2022
Historique:
pubmed:
22
12
2020
medline:
15
3
2022
entrez:
21
12
2020
Statut:
ppublish
Résumé
The underrepresentation of African American (AA) participants in medical research perpetuates racial health disparities in the United States. Open-ended phone interviews were conducted with 50 AA adults from Philadelphia who had previously participated in a genetic study of glaucoma that included complimentary ophthalmic screenings. Recruitment for the genetic study was done in partnership with a Black-owned radio station. Thematic analysis of interview transcripts, guided by the integrated behavior model (IBM), identified self-reported motivations for participating in this care-focused and community-promoted research program. Findings revealed that decisions to enroll were influenced by strong instrumental attitudes regarding learning more about personal health and contributing to future care options for others. Notable normative influences that factored into participants' decisions to enroll in the study included hearing about the study from a respected community media outlet, friends, and family. About one-third of respondents discussed past and current racial discrimination in medical research as an important sociocultural frame within which they thought about participation, suggesting that experiential attitudes play a continuing role in AA's decisions to enroll in medical research studies. Medical researchers seeking to recruit AA participants should collaborate with community partners, combine enrollment opportunities with access to health services, and emphasize the potential for new research to mitigate racial inequalities.
Identifiants
pubmed: 33345602
doi: 10.1080/10410236.2020.1853897
pmc: PMC8213868
mid: NIHMS1650211
doi:
Types de publication
Journal Article
Research Support, N.I.H., Extramural
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
515-524Subventions
Organisme : NEI NIH HHS
ID : K08 EY029765
Pays : United States
Organisme : NEI NIH HHS
ID : L30 EY029353
Pays : United States
Organisme : NEI NIH HHS
ID : P30 EY001583
Pays : United States
Organisme : NEI NIH HHS
ID : R01 EY023557
Pays : United States
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