The patient-level effect of the cost of Cancer care - financial burden in German Cancer patients.


Journal

BMC cancer
ISSN: 1471-2407
Titre abrégé: BMC Cancer
Pays: England
ID NLM: 100967800

Informations de publication

Date de publication:
05 Jun 2020
Historique:
received: 04 12 2019
accepted: 01 06 2020
entrez: 7 6 2020
pubmed: 7 6 2020
medline: 20 1 2021
Statut: epublish

Résumé

Financial toxicity of cancer has so far been discussed primarily in the US health care system and is associated with higher morbidity and mortality. In European health care systems, the socio-economic impact of cancer is poorly understood. This study investigates the financial burden and patient-reported outcomes of neuroendocrine (NET) or colorectal (CRC) cancer patients at a German Comprehensive Cancer Center. This prospective cross-sectional study surveyed 247 advanced stage patients (n = 122 NET/n = 125 CRC) at the National Center for Tumor Diseases, in Germany about cancer-related out-of-pocket costs, income loss, distress, and quality of life. Multiple linear regression analysis was performed to demonstrate the effects of economic deterioration on patients' quality of life and distress. 81% (n = 199) of the patients reported out-of-pocket costs, and 37% (n = 92) income loss as a consequence of their disease. While monthly out-of-pocket costs did not exceed 200€ in 77% of affected patients, 24% of those with income losses reported losing more than 1.200€ per month. High financial loss relative to income was significantly associated with patients' reporting a worse quality of life (p < .05) and more distress (p < .05). Financial toxicity in third-party payer health care systems like Germany is caused rather by income loss than by co-payments. Distress and reduced quality of life due to financial problems seem to amplify the burden that already results from a cancer diagnosis and treatment. If confirmed at a broader scale, there is a need for targeted support measures at the individual and system level.

Sections du résumé

BACKGROUND BACKGROUND
Financial toxicity of cancer has so far been discussed primarily in the US health care system and is associated with higher morbidity and mortality. In European health care systems, the socio-economic impact of cancer is poorly understood. This study investigates the financial burden and patient-reported outcomes of neuroendocrine (NET) or colorectal (CRC) cancer patients at a German Comprehensive Cancer Center.
METHODS METHODS
This prospective cross-sectional study surveyed 247 advanced stage patients (n = 122 NET/n = 125 CRC) at the National Center for Tumor Diseases, in Germany about cancer-related out-of-pocket costs, income loss, distress, and quality of life. Multiple linear regression analysis was performed to demonstrate the effects of economic deterioration on patients' quality of life and distress.
RESULTS RESULTS
81% (n = 199) of the patients reported out-of-pocket costs, and 37% (n = 92) income loss as a consequence of their disease. While monthly out-of-pocket costs did not exceed 200€ in 77% of affected patients, 24% of those with income losses reported losing more than 1.200€ per month. High financial loss relative to income was significantly associated with patients' reporting a worse quality of life (p < .05) and more distress (p < .05).
CONCLUSIONS CONCLUSIONS
Financial toxicity in third-party payer health care systems like Germany is caused rather by income loss than by co-payments. Distress and reduced quality of life due to financial problems seem to amplify the burden that already results from a cancer diagnosis and treatment. If confirmed at a broader scale, there is a need for targeted support measures at the individual and system level.

Identifiants

pubmed: 32503459
doi: 10.1186/s12885-020-07028-4
pii: 10.1186/s12885-020-07028-4
pmc: PMC7275553
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

529

Subventions

Organisme : Ipsen Biopharmaceuticals
ID : ESS A-DE-52030-362

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Auteurs

Katja Mehlis (K)

National Center for Tumor Diseases (NCT), Department of Medical Oncology, Program for Ethics and Patient-Oriented Care, Heidelberg University Hospital, Im Neuenheimer Feld 460, 69120, Heidelberg, Germany. Katja.Mehlis@med.uni-heidelberg.de.

Julian Witte (J)

Department for Health Economics and Health Care Management, Bielefeld University, School of Public Health, PO box 10 01 31, 33501, Bielefeld, Germany.

Bastian Surmann (B)

Department for Health Economics and Health Care Management, Bielefeld University, School of Public Health, PO box 10 01 31, 33501, Bielefeld, Germany.

Matthias Kudlich (M)

National Center for Tumor Diseases (NCT), Department of Medical Oncology, Program for Ethics and Patient-Oriented Care, Heidelberg University Hospital, Im Neuenheimer Feld 460, 69120, Heidelberg, Germany.

Leonidas Apostolidis (L)

National Center for Tumor Diseases (NCT), Department of Medical Oncology, Program for Ethics and Patient-Oriented Care, Heidelberg University Hospital, Im Neuenheimer Feld 460, 69120, Heidelberg, Germany.

Jürgen Walther (J)

National Center for Tumor Diseases (NCT), Department of Medical Oncology, Program for Ethics and Patient-Oriented Care, Heidelberg University Hospital, Im Neuenheimer Feld 460, 69120, Heidelberg, Germany.

Dirk Jäger (D)

National Center for Tumor Diseases (NCT), Department of Medical Oncology, Program for Ethics and Patient-Oriented Care, Heidelberg University Hospital, Im Neuenheimer Feld 460, 69120, Heidelberg, Germany.

Wolfgang Greiner (W)

Department for Health Economics and Health Care Management, Bielefeld University, School of Public Health, PO box 10 01 31, 33501, Bielefeld, Germany.

Eva C Winkler (EC)

National Center for Tumor Diseases (NCT), Department of Medical Oncology, Program for Ethics and Patient-Oriented Care, Heidelberg University Hospital, Im Neuenheimer Feld 460, 69120, Heidelberg, Germany.

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