Developing the New Interventions for independence in Dementia Study (NIDUS) theoretical model for supporting people to live well with dementia at home for longer: a systematic review of theoretical models and Randomised Controlled Trial evidence.

Caregivers / psychology Case Management Dementia / psychology Home Nursing Humans Independent Living / psychology Models, Theoretical Quality of Life Randomized Controlled Trials as Topic
Dementia Home care Theoretical models

Journal

Social psychiatry and psychiatric epidemiology
ISSN: 1433-9285
Titre abrégé: Soc Psychiatry Psychiatr Epidemiol
Pays: Germany
ID NLM: 8804358

Informations de publication

Date de publication:
Jan 2020
Historique:
received: 25 03 2019
accepted: 09 10 2019
pubmed: 5 11 2019
medline: 9 4 2020
entrez: 4 11 2019
Statut: ppublish

Résumé

To build an evidence-informed theoretical model describing how to support people with dementia to live well or for longer at home. We searched electronic databases to August 2018 for papers meeting predetermined inclusion criteria in two reviews that informed our model. We scoped literature for theoretical models of how to enable people with dementia to live at home independently, with good life quality or for longer. We systematically reviewed Randomised Controlled Trials (RCTs) reporting psychosocial intervention effects on time lived with dementia at home. Two researchers independently rated risk of bias. We developed our theoretical model through discussions with experts by personal, clinical and academic experiences, informed by this evidence base. Our scoping review included 52 studies. We divided models identified into: values and approaches (relational and recovery models; optimising environment and activities; family carer skills and support); care strategies (family carer-focused; needs and goal-based; self-management); and service models (case management; integrated; consumer-directed). The 11 RCTs included in our systematic review, all judged at low risk of bias, described only two interventions that increased time people with dementia lived in their own homes. These collectively encompassed all these components except for consumer-directed and integrated care. We developed and revised our model, using review evidence and expert consultation to define the final model. Our theoretical model describes values, care strategies and service models that can be used in the design of interventions to enable people with dementia to live well and for longer at home. PROSPERO 2018 registration number: CRD42018099693 (scoping review). PROSPERO 2018 registration number: CRD42018099200 (RCT systematic review).

Identifiants

DOI: 10.1007/s00127-019-01784-w PMID: 31679047
pubmed: 31679047
doi: 10.1007/s00127-019-01784-w
pii: 10.1007/s00127-019-01784-w
doi:

Types de publication

Journal Article Systematic Review

Langues

eng

Sous-ensembles de citation

IM

Pagination

1-14

Subventions

Organisme : Alzheimer's Society
ID : 330
Pays : United Kingdom

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Auteurs

Kathryn Lord (K)

Faculty of Health Studies, Centre for Applied Dementia Studies, Horton A Building, Richmond Road, Bradford, BD7 1DP, UK.

Jules Beresford-Dent (J)

Faculty of Health Studies, Centre for Applied Dementia Studies, Horton A Building, Richmond Road, Bradford, BD7 1DP, UK.

Penny Rapaport (P)

Division of Psychiatry, University College London, 6th Floor Maple House, Tottenham Court Road, London, W1T 7NF, UK.

Alex Burton (A)

Division of Psychiatry, University College London, 6th Floor Maple House, Tottenham Court Road, London, W1T 7NF, UK.

Monica Leverton (M)

Division of Psychiatry, University College London, 6th Floor Maple House, Tottenham Court Road, London, W1T 7NF, UK.

Kate Walters (K)

Department of Primary Care and Population Health, University College London, Rowland Hill Street, London, NW3 2PF, UK.

Iain Lang (I)

South Cloisters, University of Exeter, St Luke's Campus, Heavitree Road, Exeter, EX1 2LU, UK.

Murna Downs (M)

Faculty of Health Studies, Centre for Applied Dementia Studies, Horton A Building, Richmond Road, Bradford, BD7 1DP, UK.

Jill Manthorpe (J)

Social Care Workforce Research Unit, King's College London, London, WC2R 2LS, UK.

Sue Boex (S)

Alzheimer's Society Research Network Volunteer, London, UK.

Joy Jackson (J)

Alzheimer's Society Research Network Volunteer, London, UK.

Margaret Ogden (M)

Alzheimer's Society Research Network Volunteer, London, UK.

Claudia Cooper (C)

Division of Psychiatry, University College London, 6th Floor Maple House, Tottenham Court Road, London, W1T 7NF, UK. Claudia.cooper@ucl.ac.uk.
ORCID: 0000-0002-2777-7616

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